Respiratory Care Services

For those with ALS who live with a tracheostomy and mechanical ventilation, daily ALS-specific respiratory care provided by a qualified specialist is required to keep the lungs clear. Such care improves both quality of life and longevity by dramatically reducing the incidence of pneumonia and consequent hospitalization.

While Medicare/Medicaid and most insurance companies will pay for the equipment, at-home respiratory care by a qualified specialist is rarely covered, placing a very heavy financial burden on the patient and family.

Our Respiratory Care Initiative will help patients pay for at-home respiratory care from approved providers when such care is not covered. We will also work with insurance payers, including Medicare and Medicaid, to help them understand the need for at-home respiratory care and the financial benefit of covering such services.